Відео

A very nice video thank you mam I always watch your video I can learn a lot by watching your video your video is very nice you have 119 videos on your UA-cam channel I am watching all of them

Can you state aveage life of a person suffering from VHL. I a patient my self, Hemangioblastoma in ceberal, tumaor in both the kidneys .

Absolutely...

Amém Senhor ❤❤❤

Um sonho ❤❤

Esse medicamento parece um sonho ❤❤❤

My family, myself in particular have been Dr.Chittis patients no multiple occasions. He inspires confidence by him understanding what is going on us healthwize. My mom Charlotte and my aunty Myra’ along with the rest of family hand on there every word.

Hello, I have a question regarding your video and the process of mutations. As far as I know, VHL Gene is located at chromosomal position GRCh37 3:10188322. What is the wild-type allele for humans without a mutation? And what allele mutation has to happen there?

Hope I had the money to meet you and know more about Neuroendocrine cancer .

Great work, well presented, very informative lecture.

Hola sería tan amable de enviarme el correo de la doctora

Dr Chittiboinia and NIH are fantastic!!

I just had surgery to Have 1 hemangioblastoma removed in R cerebellum. It has been about a month. Do you have a friend or family member you May bring w you and to help some when you get home? I am happy to answer any questions; if you want to ask anything. BTW, I am 65. You will want to sleep some days a lot because your brain is healing. Sleep. I used ice packs to cool the incision area. I promise you will be ok

So how do I tune into the tumor board? I'm at a loss as to what to do in my situation. EXTREMELY OFF BALANCE. Had cerebellum tumor removed a year ago and am getting worse as each day passes. Need help!

I took the 2nd dose of welireg 40 mg today, 3 times a day, 90 in a month. There are no side effects at the moment, I feel very well.

Praying for all the patients complete good health ❤may they find the cure soon🙏🥹

Praying that all the patients may get cured 🙏may they find the solution soon🙏

ᑭᖇOᗰOᔕᗰ

I’m experiencing hypoxia I am currently on oxygen.

If a patient takes home oxygen therapy due to Hypoxemia, does the Belzutifan still work? I was going down to 64% - 85% Pulse-Ox, so I am now on home oxygen so I can take 120mg.

I am happy to share to the public and to let everyone know about #drodia on UA-cam who has the most effective medicines for Herpes Virus.😊😊😊

I am happy to share to the public and to let everyone know about #drodia on UA-cam who has the most effective medicines for Herpes Virus.😊😊😊

Hi VHL Alliance! Could you give me some help on how to get Welireg, I am diagnosed with VHL and that`s my only hope. Could u pls help me and give some info. I`m not a US citizen and not live in the US, so I have to contact a VHL doctor or hospital first so that I can leave for US to get treatment and prescribed. Could you give me some help and I am really desperate. Thanks you!

Thank you so much for all your efforts and successes. Keep up the great work and God bless you all!

Does this work on spinal tumors? I've 2.3mm tumor in t3 t4 and I'm stuck with it I can't walk but I have good feeling on both of my legs and I also can move both my legs a bit but operation is to dangerous and radiotherapy didn't really work either pls let me know thanks

Recently I'm diagnosed with hemangioblastoma. I'm scared of surgery 😭

I have this and not long lost my mum to it. I’m the only child and have no children myself although that would be a dream come true. I’ve stopped this horrible illness it’s true it really is life changing and I pray to have a cure ♥️

I have VHL, we do not suffer with this disease we live with it and manage it

She was my oncologist at Dana Farber after being diagnosed with testicular cancer in 1992. She is one of the most amazing human beings I've ever known. Her positivity, support, compassion and encouragement helped me get through that very difficult time meant the world to me.

Very Good Information, And I'm very glad to call him my Doctor, And it's very important to have a care team and Knowledge of your condition.

Great appreciate it

I have vhl disease

Bu videoyu izleyen Türk vhl hastası var mı?

Thanks for sharing, what strength courage & hope. Sorry for your loss.

Miss you Julie.

I have some serious question cap you please reply?? thank you

Jeanne you are a role model too, best wishes in your life. God be by your side. 💙

Jeannie is a very well spoken and dignified lady! Well done

Not an easy thing to live with. My mother has it, as well as 2 aunts and 2 cousins (and didn't get to know my grand-father who died of a brain tumor). Luckily, I got spared but it isn't easy to watch relatives struggle with it. Kinda sad that so many people have no idea it exists.

my 2 son have VHL,and also my grand daughter,not easy

all the best wishes to all VHL Warriors! you guys rock! 🌟✨👋

What a great interview! Ms. McCoy is a fantastic advocate for VHL! I'm a recent medical graduate for ultrasound and happened upon this for some research. I want to applaud her fantastic attitude and example of taking your health into your own hands.

EdBassmaster brought me here.

Excellent! Very well done! Thank you!

Wow, that is really nice. Very well done. I feel like I know Althea because her picture is on so much of the materials!

sound has been disabled. :(

I'm aware the McCoy and Hatfields have VHL

Wonder if you are related to the famous McCoy family?

Great job from everyone at CDIA!!

This video really explains about the disease both me and my Mom share this will really clear some things up with people that I know who don't understand this alot.